Sharing Genomics Data: NIH Data Sharing Policies Past, Present, and Future

This looks like an interesting and relevant webinar for anyone receiving federal funding for genetics projects. You can view it online by registering http://www.readytalk.com (Access Code 5345825) or listen by phone: 1-866-740-1260 (Access Code 5345825).

iDASH Webinar Series

University of California, San Diego

Sharing Genomics Data: NIH Data Sharing Policies Past, Present, and Future

Laura Rodriguez, Ph.D.

Director for the Office of Policy, Communication, and Education

ABSTRACT: One of the key tenets of genomics research is rapid and broad access to basic genomic data.  The National Institutes of Health (NIH) is similarly committed to open data sharing practices in order to ensure access to federally-funded data and resources and promote maximum public benefit through the public's biomedical research investment.  In this webinar, the principles underlying NIH's genomic data sharing policies will be reviewed and an overview will be provided of the policy model and expectations for protecting the interests of research participants whose data is contained within primary genomic datasets.

SPEAKER BIO: Laura Lyman Rodriguez, Ph.D., is the Director for the Office of Policy, Communication, and Education and the Senior Advisor to the Director for Research Policy at the National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH). Dr. Rodriguez works to develop and implement policy for research initiatives at the NHGRI, as well as trans-NIH programs.  She is particularly interested in the policy and ethics questions related to the inclusion of human research participants in genomics and genetics research.  Among other activities, Dr. Rodriguez has provided leadership for many of the policy development activities pertaining to genomic data sharing and the creation of the database for Genotypes and Phenotypes (dbGaP) at the NIH.
Dr. Rodriguez received her bachelor of science with honors in biology from Washington and Lee University in Virginia and earned a doctorate in cell biology from Baylor College of Medicine in Texas.

Date and Time

Friday, April 15, 2011

11:00AM-11:50AM (PST)

DETAILS ON HOW TO JOIN THE MEETING:

Web: http://www.readytalk.com/ (Join meeting with Access Code 5345825)
Audio: 1-866-740-1260 (Access Code 5345825)